Long-term Success and Support for People With Down Syndrome

What is life like for adults with Down syndrome? What happens after a person with Down syndrome graduates? And what about employment? 

Because Down syndrome is a permanent, genetic disorder, people with Down syndrome need a long-term plan. Many adults with Down syndrome lead happy, authentic, and productive lives. 

The best long-term plans for people with Down syndrome include gainful employment, strong social connections, and the right tools in place to succeed.

In this article, the Ability Central team answers some of your most pressing questions about long-term care and financial resources for people with Down syndrome, their loved ones, and their caregivers. 

We answer questions like: 

• Is Down syndrome a disability? 
• Does the Americans with Disabilities Act (ADA) cover Down syndrome? 
• What government programs offer support for people with Down syndrome? 
• What school accommodations exist for people with Down syndrome? 
• What workplace accommodations exist for people with Down syndrome?
• What jobs are best for people with Down syndrome? 
• Can people with Down syndrome live alone? 
• Is Down syndrome linked to dementia or Alzheimer’s? 
• How does elder care change for people with Down syndrome?
• Where can I find a Down syndrome support group?

Is Down syndrome a disability? 

Down syndrome is often considered a disability, but the legal definition can sometimes change. 

In general, Down syndrome symptoms tend to be severe enough to impact someone’s daily life. Most people with trisomy 21, which covers about 96% of all Down syndrome cases, experience physical and cognitive delays or impairments that affect their daily lives and independence.

However, some people with mosaic Down syndrome experience milder symptoms, which may not be as obvious. 

To qualify for benefits like Social Security Disability Insurance (SSDI), a person with Down syndrome must have a documented diagnosis and medical records that confirm their symptoms. It’s important to establish your disability status with your doctor before applying for government funding or other benefits. 

Key Takeaways: 

• Down syndrome can be considered a disability when symptoms impact someone’s daily life.
• To qualify for benefits and federal funding, a person with Down syndrome must have a documented diagnosis and medical records confirming their symptoms.